Resources & Events

The Our Way Forward Survey

The Our Way Forward survey asked patients and healthcare providers to share their experiences coping with, or treating, ovarian cancer. The results indicate that regardless of the stage of ovarian cancer, there is uncertainty among patients about what to expect after diagnosis – whether they are initially diagnosed or actively seeking greater resources and connections with others to lessen the burden of the disease.


Key Ovarian Cancer Survey Findings

The survey results revealed a number of key takeaways regarding the dialogue between women with ovarian cancer and their healthcare providers.

  • Overall Impact of Ovarian Cancer
    Graph
    53%
    of patients

    felt that ovarian cancer has had a severe or very severe impact on their lives.

    Graph

    For those women who have experienced recurrence.

    almost all
    (87%)

    report the thought of cancer returning can be overwhelming.

  • Uncertainty About What to Expect After Ovarian Cancer Diagnosis
    Graph
    49%
    of the patients

    who are in treatment or who have been treated admit that they find not being sure of the path forward after diagnosis to be very or extremely challenging.

    Graph
    34%
    of healthcare providers

    are unsure if, or do not feel that, they give their ovarian cancer patients all of the information they need about ovarian cancer.

  • Patients and Healthcare Providers View Ovarian Cancer Discussions Differently
    Graph

    say they discuss expectations for treatment often or at every visit.

    Graph

    say they discuss recurrence often or at every visit.

    Graph

    say they discuss the emotional challenges of ovarian cancer often or at every visit.

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Ovarian Cancer Resources

Additional Information

Ovarian Cancer Survey Backgrounder

Learn more about the survey purpose, methodology, respondents and partners.

Additional Information

Ovarian Cancer Survey Results Infographic

The survey revealed the emotional and support needs of the ovarian cancer community. See the results for yourself.

Additional Information

Ovarian Cancer Discussion Guide

The Our Way Forward survey revealed discrepancies between how healthcare providers and patients feel they communicate with one another. Clear, honest dialogue and collaboration with your oncology care team can strengthen education and support for people as they go through treatment and beyond. Use this discussion guide to get started.

Additional Information

Ovarian Cancer Symptoms & Signs Card

Early symptoms of ovarian cancer are difficult to detect, and by the time ovarian cancer gets diagnosed, it is often in the advanced stage, making disease recurrence likely. Learn more about how to recognize signs and symptoms as well as how to detect if ovarian cancer has returned after response to chemotherapy treatment.

Additional Information

Care Partner Resource

Being a care partner for a woman with ovarian cancer is a very meaningful job, but it isn’t always easy. This resource will help you understand why taking care of yourself is so important, how to recognize signs of stress, and what to do about it.

Additional Information

Taking Care of You

As a woman with ovarian cancer, it is important to focus on yourself, your motivations, and your goals. Read on to learn more about finding joy amidst difficult times.

Additional Information

Ovarian Cancer Glossary

Ovarian cancer terms defined for you.

Upcoming Events

Join us for a free ovarian cancer educational or storytelling event near you. RSVP today!

Special Storytelling Event with The Month

Date/Time

Location

RSVP

November 3, 2017

Time TBD

Location TBD
Washington, D.C.

E-mail arielle.cline@inventivhealth.com to register for this free event

Ovarian Cancer Educational Programs

Date/Time

Location

RSVP

Wednesday, September 13, 2017

Registration: 5:30 PM

Start Time: 6:00 PM

Milwaukee Marriott West
W231 N1600 Corporate Ct.
Waukesha, WI 53186

Call 1-844-747-1614 to register for this free event

Thursday, September 14, 2017

Registration: 5:30 PM

Start Time: 6:00 PM

Charlotte Marriott SouthPark
2200 Rexford Rd.
Charlotte, NC 28211

Call 1-844-747-1614 to register for this free event

Thursday, September 14, 2017

Registration: 5:30 PM

Start Time: 6:00 PM

Costa Mesa Marriott
500 Anton Blvd.
Costa Mesa, CA 92626

Call 1-844-747-1614 to register for this free event

Wednesday, September 20, 2017

Registration: 5:30 PM

Start Time: 6:00 PM

Aloft Tallahassee Downtown
200 North Monroe St.
Tallahassee, FL 32301

Call 1-844-747-1614 to register for this free event

Thursday, September 21, 2017

Registration: 5:30 PM

Start Time: 6:00 PM

The Desmond Hotel & Conference Center
660 Albany Shaker Rd.
Albany, NY 12211

Call 1-844-747-1614 to register for this free event

Thursday, September 28, 2017

Registration: 5:30 PM

Start Time: 6:00 PM

Chapman Cancer Wellness Center at Piedmont Atlanta - Piedmont West
1800 Howell Mill Rd #700
Atlanta, GA 30318

Call 1-844-747-1614 to register for this free event

Saturday, September 30, 2017

Registration: 9:30 AM

Start Time: 10:00 AM

The Baronette Renaissance Detroit - Novi Hotel
27790 Novi Rd.
Novi, MI 48377

Call 1-844-747-1614 to register for this free event

Saturday, September 30, 2017

Registration: 9:30 AM

Start Time: 10:00 AM

Sheraton Seattle Hotel
1400 6th Ave
Seattle, WA 98101

Call 1-844-747-1614 to register for this free event

Wednesday, November 1, 2017

Registration: 5:30 PM

Start Time: 6:00 PM

Location TBD
Philadelphia, PA

Call 1-844-747-1614 to register for this free event

Saturday, November 11, 2017

Registration: 9:30 AM

Start Time: 10:00 AM

Boca Raton Marriott at Boca Center
5150 Town Center Circle
Boca Raton, FL 33486

Call 1-844-747-1614 to register for this free event

About NOCC & OCRFA

nocc

The National Ovarian Cancer Coalition (NOCC)

Founded in 1991, the mission of the NOCC is to save lives by fighting tirelessly to prevent and cure ovarian cancer, and to improve the quality of life for Survivors. Through national programs and local NOCC chapter initiatives, the NOCC's goal is to educate communities and increase awareness about the symptoms of ovarian cancer. The NOCC also offers information to assist newly-diagnosed patients, hope to Survivors, and support to caregivers. The NOCC is also committed to the advancement of ovarian cancer research, specifically in funding the Ovarian Cancer Dream Team with Stand Up To Cancer.

ocrfa

Ovarian Cancer Research Fund Alliance (OCRFA)

Ovarian Cancer Research Fund Alliance (OCRFA) is the largest global organization dedicated to fighting ovarian cancer. OCRFA advances research to prevent, treat and defeat ovarian cancer, supports women and their families before, during and beyond diagnosis, and works with all levels of government to ensure ovarian cancer is a priority. As the largest non-government funder of ovarian cancer research, OCRFA invests in innovative, promising research. And OCRFA is the voice for the ovarian cancer community: fighting for more resources and policies on Capitol Hill, helping future health professionals recognize the disease through our Survivors Teaching Students® program, providing hope and insight by pairing newly diagnosed patients with our Woman to Woman program and connecting survivors at our Ovarian Cancer National Conference. We are united to defeat ovarian cancer.

Other Resources

American Cancer Society »

www.cancer.org

800-227-2345

Bright Pink »

www.brightpink.org

312-787-4412

Cancercare Cancer Support Community »

www.cancercare.org

800-813-4673

Force: Facing Our Risk of Cancer Empowered »

www.facingourrisk.org

866-288-7475

Foundation for Women’s Cancer »

www.foundationforwomenscancer.org

312-578-1439

National Ovarian Cancer Coalition »

www.ovarian.org

888-682-7426

Office of Women’s Health »

www.womenshealth.gov

800-994-9662

Ovarian Cancer Research Fund Alliance »

www.ocrfa.org

866-399-6262

Patient Advocate Foundation »

www.patientadvocate.org

800-532-5274

Share Cancer Support: Breast and Ovarian Cancer Support »

www.sharecancersupport.org

844-275-7427

The Our Way Forward survey was conducted online in the U.S. by Harris Poll on behalf of TESARO, Inc. between April 13 and May 2, 2017, among 254 women 18+ years of age living in the U.S. who have been diagnosed with ovarian cancer. Survey respondents were selected from individuals who had agreed to participate in surveys through the Harris Poll and their partners or were recruited to participate by patient advocacy organizations, NOCC and OCRFA. Results are not weighted and are therefore representative of only those surveyed. A parallel survey was conducted between April 17 and May 5, 2017, among 232 physicians who treat ovarian cancer patients in the U.S. consisting of 201 medical oncologists and 31 gynecologic oncologists. Survey respondents were selected from physicians who had agreed to participate in surveys through the Harris Poll and their partners. Weights for gender, by years in practice, and region were applied to align the data with the population parameters for medical oncologists and gynecologic oncologists, separately. A post weight was then applied to combine the two medical specialty groups in proper proportion for the total.